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Showing posts with label hearing loss. Show all posts
Showing posts with label hearing loss. Show all posts

Wednesday, December 12, 2007

My New Blog

Well I finally got my new Hearing Loss Blog set up and the post from here copied over to the new one. If you are interested in checking it out and maybe bookmarking it you can see it at
Hear Today Gone Tomorrow . I thought the name was fitting since I feel that way of hearing one day and then nothing the next day, though I just didn't realize it.

I hope to update that blog once a week, though we know I procrastinate alot on blogging lol but I do try. Sometimes there isn't anything interesting to post lol but I guess I will try to do better.

So check out my blog feel free to link me or even consider exchanging links if you have a blog of similar interest.

Wednesday, December 5, 2007

My Dear Santa Letter and Wish

All I want for Christmas this year is my 2 Hearing Aids so I can hear my children, family and friends when they speak to me instead of having to ask them to speak up so I can hear them. Is that to much to ask for? I guess it could be when it'll cost $4300.00 in order to get my hearing aids.

So today was my follow up appointment with the audiologist aka the hearing aid dr. I went to find out what the next step would be, ordering, payments etc so I could see where we stood. After looking at the many different types of h/a's I decided on the over the ear type since I have long hair and almost always wear it down. These were no more expensive than the in the ear kind so I figured why bother paying more.

Granted the price wasn't nearly as bad as I had imagined but that's still alot of money at Christmas time especially when you don't have the funding to pay it. I will be visiting the bank fairy as I like to call them and praying we can get a loan to cover them and actually be able to afford the payments. Our credit isn't the best though it's not terrible but ya know how banks are.

This has been a hard road to travel becoming deaf at approx 27 yrs old though I didn't know til I was 30. My first clue should have been when I was pregnant with my youngest because I started noticing that my ears seemed to be stopped up. I had and have been having terrible sinus/allergy problems so I contributed it to that. When I was working in 2004/2005 I did notice my hearing when I was on the phone was starting to be worse but I didn't think anything of it.

Fast forward to after my little one was born, our tv volume has the numbers on it. I used to be able to hear it at 28 to 30 and thought anything over 30 was very loud....right now I have to listen to it at 45 plus in order to hear it. My hearing disorder is progressive meaning it'll continue over time to worsen, but thankfully the hearing aids will be able to be adjusted to that.

I am working on moving all my hearing problem posts over to my blog that I started call, Hear Today Gone Tomorrow...thought it was fitting. So I'll post when that blog is up and there's something to read on it.

Wish me luck on my hearing aid money situation. If you are in the holiday spirit and have a little girl who would love a Rose Petal Cottage I have one on ebay to raise money for my h/a's.
You can check it out here.

Thursday, October 11, 2007

Hearing Disorder Support

I have been searching for a couple of days now for online support groups for adults with hearing disorders and to be honest there really isn't to many for those with disorders and not completely deaf. I came across many many groups for parents of deaf children, for adults that are deaf but I couldn't find one I truly felt like I could fit into.

My "disorder" is a progressive one called stapedial otosclerosis and from the House Clinic.com site states:

"Otosclerosis is an abnormal, microscopic growth of bone in the walls of the inner ear. This abnormal growth causes the stapes bone (also called the "stirrup") to become immobile or "fixed". Normally the stapes vibrates freely to allow the transmission of sound to the inner ear, but when it cannot move, it prevents sound waves from reaching the inner ear fluids, and hearing is impaired.

Otosclerotic bone sometimes involves other structures of the inner ear, thereby affecting the nerves of the inner ear. When this occurs it also causes a distortion or difficulty in understanding the speech of others, regardless of how loudly they talk.

Otosclerosis affects only the ears and usually involves both ears. It occurs in men and women with almost equal frequency and usually begins in the teens or early twenties. Although otosclerosis tends to run in families, there is no pattern to its heredity."

"Stapedial OtosclerosisUsually otosclerosis spreads to the stapes or stirrup bone, the final link in the middle ear transformer chain. This stapes rests in a small groove, the oval window, in intimate contact with the inner ear fluids. Anything that interferes with its motion results in a conductive hearing impairment. This type of impairment is called stapedial otosclerosis and is usually correctable by surgery.

The amount of hearing loss due to involvement of the stapes and the degree of nerve impairment present can be determined only by careful hearing tests."

You can read more at House Clinic about the two treatments that are available to those with my disorder. Hearing aids or surgery which is called a stapedectomy.

My ENT told me that it was a hereditary disorder so not sure what to think about that but my mother is hard of hearing in her left ear which is also my worst ear. Either way I am losing my hearing and honestly it's much worse than I had anticipated when I went to the ENT.





These 2 charts show a difference in hearing normally and below normal. The first chart shows db at 20 or less that is normal range of hearing. The second shows the db down to 50 this shows hearing loss.

My personal chart was in the 80's which is Severe Hearing Loss. That means I do not hear normal range of sound, if you are across the room and talking to me in a normal voice I will not hear you. In fact my range of hearing never got above below avg hearing mark even on the highest pitch sounds.

So those of you who know me and talk to me via phone or in person know that I am not ignoring you I really can not hear you. I hope this helps explain my hearing loss a bit better.